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At 2.10am on Tuesday 4th Sept. 2007
Robert lost, with much bravery and courage,
his battle with cancer and went to sleep peacefully.
It is his parents will, now the charity has reached Rob's wish of £100,000, that we continue to fund the researcher and that will cost £30,000 per year.
Thank you for all your support!!!
Hi my name is Rob, I am 15 years old and have a rare cancer (Desmoplastic Small Round Cell Tumour) that predominantly affects teenagers.
Just before my 15th birthday (mothers day), I was taken to hospital. Previously I had been back and forth to hospital being diagnosed with different problems, food poisoning, gastroentoritis, a hernia, IBS (irritable bowl syndrome). On my last visit the doctors noticed that my prostate gland was swollen and I was finally admitted for further investigations.
After a number of blood tests and scans they noticed several tumours in my abdomen. I was transferred to The John Radcliffe Children's Hospital in Oxford where the consultants confirmed the rare cancer (DSRCT).
I had 5 courses of chemo which made me feel really sick, and i lost 3 stone, but i was fed with a feeding tube straight into my abdomen, to help maintain my weight. All this was to no avail, only to find out the chemo had no or little affect on my tumours, that later was to take my life.
My aim is to raise awareness of this rare Cancer and fund research into my condition and to help save other lives or at least give them a longer and better quality of life to enable them to live a little, and to make teens know about this rare and very agressive disease.
NOW WE HAVE RAISED THE £100,000 FOR THREE YEAR RESEARCH, OUR AIM IS TO KEEP FUNDING THE RESEARCH FOR AS LONG AS WE CAN TO HELP FIND OTHER TREATMENTS, SO PLEASE HELP ME BY DONATING TO MY CHARITY. THANK YOU, ROB!!
