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At 2.10am on Tuesday 4th Sept. 2007
Robert lost, with much bravery and courage,
his battle with cancer and went to sleep peacefully.
It is his parents will, now the charity has reached Rob's wish of £100,000, that we continue to fund the researcher and that will cost £30,000 per year.
Thank you for all your support!!!
Rob
9/5/92 - 4/9/07
Hi, my name is Rob, I am 15 years old and have a rare cancer, Desmoplastic Small Round Cell Tumour), that is predominantly affects teenagers.
Just before my 15th birthday (Mother's Day), I was taken into hospital. Previously, I had been back and forth to hospital and been diagnosed with different problems, food poisoning, gastroenteritis, a hernia and IBS (irritable bowel Syndrome). On my last visit, the doctor noticed that my prostate gland was swollen and I was finally admitted for further investigation.
After a number of blood tests and scans, they noticed several tumours in my abdomen. I was transferred to The John Radcliffe Childrens Hospital in Oxford, where the Consultants confirmed I had the rare cancer, (DSRCT).
I had 5 courses of chemo, which made me feel really sick, and I lost 3 stone in weight. I was red with a feeding tube straight into my abdomen, to help maintain my weight. All this was to no avail, as the chemo had little or no affect on the tumours, that were later to take my life.
My aim is to raise awareness of this rare Cancer and to fund research into the disease. I hope to help save lives or at least give others a longer and better quality of life. I also hope to ensure that other teenagers know about this rare and very agressive disease.